My babies!

My babies!
Catch up on our families daily adventures, learn more about our dreams and experience life with diabetes through our eyes! Grab a cup of something warm and read on to learn more about my Random Thoughts....

Thursday, October 23, 2014

Advocare!

https://www.advocare.com/140841049/MemberHome.aspx

I do it for the Spark! Let me know if I can help you!

Teal Pumpkin Project

This year we will be participating in the Teal Pumpkin Project. 
If you haven't heard of it before- keep reading to learn more.



The Teal Pumpkin Project was created to promote inclusion and respect of individuals managing food allergies – and to keep Halloween a fun, positive experience for all.

As stated on their website:

"Halloween can be a tricky time – quite literally – for families managing food allergies because many traditional Halloween treats aren’t safe for children with life-threatening food allergies. The Teal Pumpkin Project is designed to promote safety, inclusion and respect of individuals managing food allergies – and to keep Halloween a fun, positive experience for all. The idea for the Teal Pumpkin Project originated with the Food Allergy Community of East Tennessee (FACET), and FARE is pleased to be bringing it to the attention of families across the country for the first time this year.This campaign encourages people to raise awareness of food allergies by providing non-food treats for trick-or-treaters and painting a pumpkin teal - the color of food allergy awareness - 
to place in front of their house along with a free printable sign from FARE 
to indicate they have non-food treats available."

Even though Kaci is able to eat candy with Type 1 Diabetes- it must be covered with the correct amount of insulin. I will never forget how stressful the first Halloween after her diagnosis was. I have never been the mom that let my kids devour half of their bag of Halloween candy anyway. We have always chosen 3-4 pieces to eat that night and then saved the rest for later. But- we do have to cover any amount she eats with insulin. It is often hard to correctly guess how many carbs are in each piece of candy - since none of them are labeled. Then you have to worry that she will go high or low during the night- from not enough or too much insulin. It can be "tricky".
Here is Kaci as Hannah Montona- Bailey as Mario.
This was taken just 3 months after her diagnosis.


Like Kaci- there are other kids who also have to watch what they eat. There are many kids with food allergies: gluten, latex, wheat and peanut allergies. All of which can be life threatening. 
So, that is why we have chosen to participate "officially"this year with a teal pumpkin displayed on our porch. We will be passing out rubber duckies (as well as candy) -
as we have for the last several years. 

Kaci is working on painting and decorating our teal pumpkin. Please check back for more pictures later- and to learn more about this project and print signs and facts click on the link below:



http://www.foodallergy.org/teal-pumpkin-project

 

Wednesday, October 22, 2014

I'm back!

What has happened to me? Now that I am not working - you would think I would have LOTS of time to write on this blog. However- it seems like quite the opposite. Somedays I feel like I don't even have a chance to sit down! Well....I am going to do my best to start blogging again. 
I don't know if anyone has really missed me- 
but I know that I have missed getting my feelings out and on this computer.


It is hard to believe that it is already mid-October. This school year is really flying by. I wish I could slow things down a little. Hard to believe it is Bailey's last year in Elementary! ACK! That is so not cool!  Kaci is cruising through Middle school at lightening speed as well. They are both excited about being at the same school again next year. - me not so much, because that means I will have a 6th grader and an 8th grader! Oy!




Between Bailey's baseball practice/games and Kaci's dance practice/football game performances- it sometimes feels like we are never home! BUT I love it!!

This season Bailey is a Riverdog. They completed the season last Saturday as first place/undefeated champs! WOW! Way to go! He plays in the tournament tonight at 6 and they hope to go all they way! It is single elimination- but we are counting on winning- so that means they will play again this Saturday at 10- and then again at 2!~ Let's go Riverdogs! Thank you to everyone who made it out to the Town and Country Fields to watch him play this season! He makes me so proud!




Kaci had a great "kick routine" at the football game last night! Next Tuesday will be her last football game performance of the year! What? How did that happen so fast? She is so excited to perform their special Halloween routine! I can not wait to see their new outfits for the dance. I think we have a lot of friends and family coming out to support her that night and we want to thank you for that. Also- thank you to all of the family/friends that have already come out to see her perform. She has really enjoyed being a part of the dance team.  I am so proud of her.


We are getting excited about our 6th annual "Say Boo to Diabetes" walk this Sunday, October 26th. So far Kaci has raised right at $3,400.00! Amazing! 



We will never lose hope that a cure will be found!

Tuesday, July 15, 2014

We survived!

Well.....we all survived the first day of Line Camp!
I even think Kaci had FUN! YEAH!

On the way to pick up the girls an ambulance and fire truck pulled out in front of me. I got a little nervous, but told myself everything was fine. Then when we got the  stoplight at the school and they ran the light to pull into the school parking lot- I started getting a little panicky! - but again, I told myself it was going to be fine. They looked like they were going to go to the opposite side of the building,-but then they pulled right up to the same door I had dropped the girls off at! YIKES! That is when I quickly parked and started to speed walk inside.

I followed the EMS worker until I heard a teacher say, "In here...She is in here," She pointed directly to the gym where I had dropped Kaci and her friend, Kyrah off that morning.

That is when breathing got a little difficult! LOL! I looked in the gym, but the girl was way in the back too hard to make out who it was. So- I quickly turned around and looked in the other gym. Is wasn't long before I found Kaci's dance team and then spotted both her and Kyran.   I almost asked the EMS worker for a little bit of oxygen- holy crap! Instant headache!!

Shortly after, they brought a young girl out on a stretcher. She looked okay- so I am hoping it is just something minor and they were erring on the side of caution!

Here is a quick picture I took of Kaci this morning before Day 2 of Line Camp!

ADORBS!

Saturday, July 12, 2014

Line Camp

Kaci has decided to join the dance team at her school next year! She will be a Golden Spark! I am so excited for her. I know that she is going to do a great job and have so much fun. When I was in middle school - there was no dance team. I think it is great that she can test it out now - before she gets to high school. We were able to pick up most of her materials on Thursday of this week: tights,tennis shoes, boots, jazz shoes, sweat pants, football jerseys, tights, leotards, sports bras, earrings, etc


They have a 4 day line camp starting this coming Monday. It will run from 8-5 at one of the high schools. She has never been away from me for this long- unless she was with a family member or at school. 



What is the big deal...you may ask yourself.....Well.....

Difference here is ....she will be exercising a lot and there will be no nurse anywhere close! No one is trained in anything "Diabetes" and well, - um...that is not cool!



 Guess it is time to put on my "worry hat" and count down the seconds, minutes and hours until I can go and pick her up. She will be wearing her CGM, but not sure that the receiver can be within 20 feet from her while they are practicing- so not sure that it will work for her as well as I had hoped.  Her dance teacher has been very sweet- and has even said I can stop in to check on Kaci anytime I want to. Problem is....when you are 12- not so cool to have your mom stop in to check on you!



Here is an email I sent to her dance teacher.....I tried to sound calm and cool about the whole thing. Not sure if I accomplished that or not. While I don't want to make Diabetes a scary beast....fact is ....at times IT VERY WELL CAN BE A FREAKIN' SCARY BEAST!



Mrs. Taylor--
So excited to get the Line Camp schedule!

I must say I am getting a little nervous about camp- probably more than most.
I know that everything will be fine, but Diabetes always has to throw an EXTRA amount of worry into my worry pot! And since the nurse will not be available, I'm even more nervous. 

Kaci has recently gotten a CGM (Continuous Glucose Monitor) it is a small transmitter device that is attached to her arm, leg or stomach with a spring back needle (which is then removed) to leave a small cannula (or tube) underneath her skin. The small transmitter device reads her blood sugar every 5 minutes (without her poking her finger for blood- yeah!) The device then relays her blood sugar reading to a small receiver that looks almost exactly like an ipod. The receiver must be within 20 feet of her in order for the transmitter to receive the information. It will sound an alarm if her blood sugar reading is below 70 (too low) or above 260 ( too high).

The lows are the ones I worry about....they are brought on by too much insulin (if we do not calculate her food intake correctly)- or by exercise...which greatly reduces a person's blood sugar.

I am so excited about this device, but am unsure about how much it will be able to help her during dance camp. She will not have a pocket to put her CGM Receiver in her dance uniform and I fear she can not set it on the floor 20 feet from her as it may get stepped on ....or she will be unable to hear it should it beep. I am not sure if the instructor putting in in their pocket or near them at the front of the room is an option??  She will have the device on Monday and we will see how it works out.

Kaci will be stopping about every 2 hours to check her blood sugar (11:00, 1:00, 3:00 and 5:00) This seems to fit in your schedule pretty well....as far are snack and lunch break. I would like for her to call me at lunch on her phone in order to tell me her blood sugar reading so that we can decide if she should make a correction to her meal insulin.

She will need her meter (the machine she pokes her finger with in the same room with her at all times), as well as juice and/or glucose tabs.  

I will also be sending her emergency shot with her - should she need it. She only needs someone to administer her emergency shot if she becomes unresponsive and/or is unable to swallow juice or glucose tabs when asked to, or If she is unresponsive, passes out or has a seizure. I would like to show you her emergency shot on day one of camp- or any time prior that is convenient for you. We have NEVER had to use this. The directions are also located inside the container that it is held in. The shot would need to be administered into her upper  thigh. After it is administered please call 911 and me 512-797-6660.

I am sure that everything will be alright- but exercise will greatly decrease her blood sugar- so I will send plenty of snacks as well to help keep it up.

If her blood sugar does become low, she will need to snack or juice  and sit out for 15 to 20 minutes and then recheck. If it is still low, she has to do this 20 minutes all over again until get blood sugar is within normal range.  Kaci does not like to stand out- or be different. She will not take advantage by stopping unless she needs to. I promise!

I am not sure if there is a good time that you can let the other girls on the team know about her diabetes. It would be helpful if they were aware in case there is a situation where they would be able to help her by getting her juice or meter should she need the help.

What Dance Mates should know:

*You can't catch diabetes
*Kaci takes 5-6 shots a day and that many finger pokes
*Sometimes (especially after exercise) Kaci's blood sugar may go low- she needs juice or candy quickly to raise her sugar to a safe level. If she is disoriented someone should get her sugar quickly.
*Type 1 is not caused by diet, weight or eating too much sugar. Your pancreas just stops working.
*She will never OUTGROW diabetes and there is nothing she can do to make it go away.

If there are any questions you have for me, please let me know.
Maybe you can share this email with the other teachers who will be on campus at Line Camp.

So- please say a prayer for Kaci and for me- for all the teachers at the camp, for her teammates and for Clint and Bailey that we make it through this week without any hitches! Looks like it is time to remember these 2 quotes...

“Get comfortable with being uncomfortable!” - Jilliam Michaels
"Nobody trips over mountains. It is the small pebble that causes you to stumble. Pass all the pebbles in your path and you will find you have crossed the mountain. ~Author Unknown

We will cross the mountain....Kaci can do it. I know she can!

Are you my type?


It's that time of year again! 
We are taking orders for Kaci's Krushers 6th annual "Say Boo to Diabetes" family walk to cure Diabetes!

This year the shirts will be purple with lime green writing. 
The front will say "Are you my type?" 
The back will say "Kaci's Krushers 2014- 
Walking with JDRF to cure Type 1 Diabetes"



T-shirts are $20 each or $18 if you buy 2 or more.

They are available in the following sizes:
Youth S, M,L and XL
Adult S, M, L, XL and 2 XL
All proceeds go to JDRF.

The walk will be held at the Domain on 
We would love to have you join us! 

Kaci was diagnosed with 
Juvenile ( Type 1) Diabetes on July 28, 2009. 
We will never lose hope 
that a cure will be found!

Tuesday, July 8, 2014

Beer Butt thinks Safety First!

Not sure what made me decide to try and cook a Beer Butt Chicken on my own this week. My neighbor made one a few weeks ago-and I think I read some of my friend's post on Facebook talking about how they were giving it a try...so I guess I thought ...what the heck! I can do that!

It was pretty easy- First- Amber pulled out his neck, heart and other gross parts. Then,  I drank 1/2 of the beer, and I rubbed Big Bird down with butter and sprinkled whatever was in the seasoning drawer on him. Next, I cut up an orange and put 1/2 up his butt and 1/2 on his head (what a cute little hard hat).I sprayed the beer can with Pam (for easy removal later) - and balanced him on the grill heated to 200 degrees! I checked him every hour- or when I heard him sizzle (he got a little tipsy and fell over once or twice)  Three hours later I pulled him off the grill and he was PERFECT! Everyone loved it - easy, peasey!